The National PKU Alliance includes local and regional support groups, healthcare providers, researchers, formula companies, pharmaceutical companies, low-protein food vendors, and other individual and corporate partners, united with a mission to improve the lives of individuals and families associated with PKU through research, support, education, and advocacy.


MACPAD initiated the proposal for National PKU Awareness Month


Dr. Harold Trick is at Kansas State University


Kuvan is a new, FDA-approved drug from Biomarin. It is a synthetic form of tetrahydrobiopterin, which is an enzyme cofactor that helps to work with phenylalanine hydroxylase to metabolize phenylalanine.


Ryan's PKU Foundation of Virginia


Holly's Blog is especially for the spouses and partners of adults with PKU


PKU Mom is written by Carole Anne Murphy

Celiac Disease Support Group

Phenylketonuria Support Group

Genetic & Metabolic Support Groups



Related Links